addison-photooo

Addison was diagnosed with Charge Syndrome. She is 10 years old and loves life more than anything. She loves music, school, sports, playing with her friends, and being outside! She is also a fashion diva! She loves her clothes and loves to look pretty! Her mother and father always states “She is our little miracle because of everything shes been through.” She also has tracheomalacia, bilateral vocal cord paresis, airway obstruction, cleft lip and palate, and hearing loss. She currently wears a hearing aid and a cochlear implant. She has been tube fed all her life. She is unable to swallow any foods or drinks as she is at risk for aspiration and subsequent aspiration pneumonia. Addison’s only form of communication is by sign language. Her Audiologist stated that she would more than likely benefit from having an ipad in hopes to communicate with people who doesn’t know sign language. Her abillity to orally communicate is limited due to her trach, vocal cord paresis and hearing loss. We are excited to see what the future brings for her as she grows older!